In what may be an unprecedented collaboration, a rare and as yet incurable illness has brought together two unlikely communities: parents of children and owners of dogs. The two groups are linked by ...
Batten disease, also known as Neuronal Ceroid Lipofuscinoses, is a rare, inherent, neurological disorder that begins in childhood but may take a few years to show symptoms. It is one of around 50 ...
Doctors told Gordon Gray his daughters would not live to see their 12th birthday — -- The Hollywood couple who started a foundation to quickly fund research to find a cure for Batten Disease, ...
LYON, FRANCE and AUSTIN, TX / ACCESS Newswire / May 13, 2025 / Theranexus, a biopharmaceutical company developing drug candidates for rare neurological diseases, and the Beyond Batten Disease ...
In June the then-one-year-old, who lives near the Whitsundays, Queensland, suddenly stopped responding to her name, speaking ...
Neuronal ceroid lipofuscinosis, commonly known as Batten disease, is an inherited pediatric neurodegenerative lysosomal storage disease caused by mutations in the CLN5 gene. The disease is incurable ...
A Whitsundays family is racing against time to create precious memories with their two-year-old daughter after doctors ...
Australian girl is one of 10 or 11 worldwide with rare form of Batten's disease. — -- When Olivia Thurston was born on January 15, 2008, weighing in at 8 pounds and 6 ounces, she was a happy and ...
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