Takeda Pharmaceutical teamed up with the Boston Celtics to raise awareness of rare diseases at the C’s-Cavaliers game on ...
Takeda made it rain zebras at a Boston Celtics game Friday. The stunt saw 100 toy zebras parachute from the arena’s rafters ...
Patient Advocacy Initiative staff speak on Notre Dame’s Rare Disease Day event and impact for the rare disease community.
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Rare Disease Day: Richmond mother turns grief into advocacy after losing son to rare diseaseDonna Reynolds of Richmond knows all too well the devastating toll that a rare disease can take, not just on an individual, ...
The last day of February is Rare Disease Day, and one Union County group wanted to shine a light on those living with rare ...
MADISON, Wis. (WIFR) - For 14 years, Treyson Wallace’s family searched for answers. Born in 2009, Treyson failed a newborn ...
On the very day Noa was diagnosed, an experimental gene therapy and clinical trial were posted to treat Canavan disease. Noa was only the third patient in the world to be dosed with the gene therapy, ...
Like most children, Morgan enjoys games, showing off her toys, and spending some time on her tablet. But sadly, unlike most children, Morgan is living life with an ultra-rare disease. Her mother, ...
The last day of February is Rare Disease Day, and one Union County group wanted to shine a light on those living with rare ...
President Donald Trump is expected to sign an executive order designating English as the official language of the United ...
“So, Ataxia-Telangiectasia is similar in ways to muscular dystrophy, meaning it’s a neuromuscular progressive disorder. So ...
Rare Disease Day, observed on Feb. 28, brings attention to uncommon diseases affecting populations of 200,000 or fewer. In ...
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