Nearly all children with spinal muscular atrophy who started on Evrysdi before symptom onset are walking after three years, ...
Columnist Helen Baldwin worried the baby who arrived May 18, 1997, would keep everyone awake, but his silence signaled a ...
Columnist Connie Chandler writes of a generational disconnect with new SMA patients, but says living fully must remain their ...
SMA Europe has launched an online tool designed to help patients, doctors, and others in the spinal muscular atrophy (SMA) ...
The exergame Tales from the Magic Keep aims to boost physical activity, and proved to be a feasible tool for children with ...
For people with spinal muscular atrophy, physical therapy can help support mobility, strength, and quality of life, regardless of SMA type.
The apitegromab approval process reminded guest writer Joanna Buoniconti of lessons about keeping hope alive while protecting ...
There is currently no cure for spinal muscular atrophy (SMA) yet, but there are a number of treatments that can delay the progression of symptoms, as well as several experimental treatments currently ...
ARD-1676, a medication that works by tagging toxic proteins for destruction in cells, promotes clearance of the androgen receptor (AR) protein, which is faulty and clumps in spinal and bulbar muscular ...
The way spinal muscular atrophy (SMA) affects you may change over time. And, at some point, you may consider changing your SMA treatment. Having a better understanding of when to switch SMA treatment ...
Columnist Alyssa Silva shares how a stranger's story helped her parents navigate her SMA diagnosis — a testament to the power ...
Home health nursing is a noble profession, writes columnist Ari Anderson, who shares what the experience is like in his own home.