The Dunlavin community will gather at the St Nicholas Church of Ireland on March 9 to support local sisters Brona and Helen Kearney at a concert to raise awareness of their rare disease, Friedreich’s ...

The Permanent Council of the Organization of American States (OAS) will hold two meetings on Wednesday, March 5, in the Simón ...

Ciarán was one year old when he was diagnosed with the condition, however, Gillian said she knew when he was born that ...

With more than 10,000 rare diseases identified, the challenges faced by patients and their families are vast, diverse, and ...

Takeda Pharmaceutical teamed up with the Boston Celtics to raise awareness of rare diseases at the C’s-Cavaliers game on ...

Takeda made it rain zebras at a Boston Celtics game Friday. The stunt saw 100 toy zebras parachute from the arena’s rafters ...

Patient Advocacy Initiative staff speak on Notre Dame’s Rare Disease Day event and impact for the rare disease community.

This World Rare Disease Day, as we celebrate the victories of brave young souls and their families, let us rally together, reiterating the message that every life, no matter how rare, is extraordinary ...